Yesterday, a blogger I like, Love that Max, teamed up with her friend Scary Mommy for a great discourse among their collective readers. Love That Max (LTM) is a blog about raising Max, who has cerebral palsy, and Scary Mommy (SM) is about raising kids. They asked their readers to read each other’s concerns and answer each other’s questions.
LTM asked her readers to post comments telling people what they’d like them to know about raising a special needs kid and to go over to SM and address their questions. The comments range from “Stop staring at us” (many have had very negative experiences) to “Look, we all have challenges. My son’s medical issues don’t trump your potty training woes”.
SM encouraged her readers to read the comments on LTM, and asked them to post questions they’ve always wanted to ask special needs parents but have never had the chance to ask. The questions were great. They ranged from “How can I offer help without feeling like a jerk?” and “Do you join support groups?”
We are lucky in that we have never had a negative experience… in public or otherwise. But Max is not in wheel chair and he doesn’t have scars or any outward appearance that anything is wrong. When people realize he can’t really talk, they sometimes ask. And I tell them all about him. (What? Me talk a lot?) I find that the more I talk, the more information I get. I’ve found fabulous practitioners for him just by talking to strangers.
So, since I have so many friends with special needs kids, typical kids, multiple kids, one kid and no kids, I want to know what you have to say. Please comment with what you’d like other people to know or what you want to know from them.